The perception of otolaryngology-related diseases among parents of children with Down syndrome in Jeddah, Saudi Arabia

OBJECTIVE: To assess the perception of otolaryngology-related diseases among parents of children with Down syndrome (DS).

METHODS: A cross-sectional survey design. A questionnaire was distributed to parents of children with DS. The parents were attending an event aiming to raise awareness that was organized on World Down Syndrome Day on the 21st of March 2013, organized by Princess Al-Jawhara Center of Excellence in Research of Hereditary Disorders, King Abdulaziz University, Jeddah, Saudi Arabia. The complete dates of study were March to May 2013.

RESULTS: Questionnaires were completed and perceptions regarding 10 common otolaryngology-related diseases were obtained from 78 parents. The data shows that most of the parents were not familiar with these otolaryngology-related diseases.

CONCLUSION: Many parents were not aware of some of the otolaryngology related conditions affecting children with DS, and did not have regular follow-up. Perception was highly affected by the presence of the condition in the children. Awareness of otolaryngology-related diseases affecting children with DS should be raised.