Comprehensive patient care improves quality of life in transfusion dependent patients with β-thalassemia

References

1. ↵
   1. Mazzone L,
   2. Battaglia L,
   3. Andreozzi F,
   4. Romeo MA,
   5. Mazzone D

   (2009) Emotional impact in beta-thalassaemia major children following cognitive-behavioural family therapy and quality of life of caregiving mothers. Clin Pract Epidemiol Ment Health 5:5.

   OpenUrlCrossRefPubMed
2. ↵
   1. Torcharus K,
   2. Pankaew T

   (2011) Health-related quality of life in Thai thalassemic children treated with iron chelation. Southeast Asian J Trop Med Public Health 42:951–959.

   OpenUrlPubMed
3. ↵
   1. Dahlui M,
   2. Hishamshah MI,
   3. Rahman AJ,
   4. Aljunid SM

   (2009) Quality of life in transfusion-dependent thalassaemia patients on desferrioxamine treatment. Singapore Med J 50:794–799.

   OpenUrlPubMed
4. ↵
   1. Gollo G,
   2. Savioli G,
   3. Balocco M,
   4. Venturino C,
   5. Boeri E,
   6. Costantini M,
   7. et al.

   (2013) Changes in the quality of life of people with thalassemia major between 2001 and 2009. Patient Prefer Adherence 7:231–236.

   OpenUrl
5. ↵
   1. World Health Organization, Division of Mental Health. WHOQOL-BREF: introduction, administration, scoring and generic version of the assessment:field trial version, December 1996. [Accessed 2014 April 1]

   (1996) (WHO, Geneva (CH)) Available from:http://www.who.int/iris/handle/10665/63529.
6. ↵
   1. Jafari H,
   2. Lahsaeizadeh S,
   3. Jafari P,
   4. Karimi M

   (2008) Quality of life in thalassemia major: reliability and validity of the Persian version of the SF-36 questionnaire. J Postgrad Med 54:273–275.

   OpenUrlCrossRefPubMed
7. ↵
   1. Ohaeri JU,
   2. Awadalla AW

   (2009) The reliability and validity of the short version of the WHO Quality of Life Instrument in an Arab general population. Ann Saudi Med 29:98–104.

   OpenUrlCrossRefPubMedWeb of Science
8. ↵
   1. Habeb AM,
   2. Al-Hawsawi ZM,
   3. Morsy MM,
   4. Al-Harbi AM,
   5. Osilan AS,
   6. Al-Magamsi MS,
   7. et al.

   (2013) Endocrinopathies in beta-thalassemia major. Prevalence, risk factors, and age at diagnosis in Northwest Saudi Arabia. Saudi Med J 34:67–73.

   OpenUrl
9. ↵
   1. Khairkar P,
   2. Malhotra S,
   3. Marwaha R

   (2010) Growing up with the families of β-thalassaemia major using an accelerated longitudinal design. Indian J Med Res 132:428–437.

   OpenUrlPubMed
10. ↵
    1. Ammad SA,
    2. Mubeen SM,
    3. Shah SF,
    4. Mansoor S

    (2011) Parents’ opinion of quality of life (QOL) in Pakistani thalassaemic children. J Pak Med Assoc 61:470–473.

    OpenUrlPubMed
11. ↵
    1. Caocci G,
    2. Efficace F,
    3. Ciotti F,
    4. Roncarolo MG,
    5. Vacca A,
    6. Piras E,
    7. et al.

    (2012) Health related quality of life in Middle Eastern children with beta-thalassemia. BMC Blood Disord 12:6.

    OpenUrlCrossRefPubMed
12. 1. Gharaibeh H,
    2. Amarneh BH,
    3. Zamzam SZ

    (2009) The psychological burden of patients with beta thalassemia major in Syria. Pediatr Int 51:630–636.

    OpenUrlCrossRefPubMed
13. ↵
    1. Baghianimoghadam MH,
    2. Sharifirad G,
    3. Rahaei Z,
    4. Baghianimoghadam B,
    5. Heshmati H

    (2011) Health related quality of life in children with thalassaemia assessed on the basis of SF-20 questionnaire in Yazd, Iran: a case-control study. Cent Eur J Public Health 19:165–169.

    OpenUrlPubMed
14. ↵
    1. Pruthi GK,
    2. Singh TB

    (2010) Psychosocial Burden and Quality of life in parents of Children with Thalassemia and Cerebral Palsy: A Comparative study. Delhi psychologist 2:46–57.

    OpenUrl
15. 1. Naderi M,
    2. Hormozi MR,
    3. Ashrafi M,
    4. Emamdadi A

    (2012) Evaluation of Mental Health and Related Factors among Patients with Beta-thalassemia Major in South East of Iran. Iran J Psychiatry 7:47–51.

    OpenUrl
16. ↵
    1. Ishtiaq R,
    2. Siddiqui SH,
    3. Sajid R

    (2011) Quality Of Life in Thalassemia Patients. International Journal of Collaborative Research on Internal Medicine and Public Health 3:203.

    OpenUrl
17. ↵
    1. Hongally C,
    2. Benakappa AD,
    3. Reena S

    (2012) Study of behavioral problems in multi-transfused thalassemic children. Indian J Psychiatry 54:333–336.

    OpenUrl
18. ↵
    1. Thavorncharoensap M,
    2. Torcharus K,
    3. Nuchprayoon I,
    4. Riewpaiboon A,
    5. Indaratna K,
    6. Ubol BO

    (2010) Factors affecting health-related quality of life in Thai children with thalassemia. BMC Blood Disord 10:1.

    OpenUrlCrossRefPubMed
19. ↵
    1. Dubey AP,
    2. Parakh A,
    3. Dublish S

    (2008) Current trends in the management of beta thalassemia. Indian J Pediatr 75:739–743.

    OpenUrlCrossRefPubMed
20. ↵
    1. Goulas V,
    2. Kourakli-Symeonidis A,
    3. Camoutsis C

    (2012) Comparative effects of three iron chelation therapies on the quality of life of greek patients with homozygous transfusion-dependent Beta-thalassemia. ISRN Hematol 2012:139862.

    OpenUrl
21. ↵
    1. Cianciulli P

    (2008) Treatment of iron overload in thalassemia. Pediatr Endocrinol Rev 6(Suppl 1):S208–S213.

    OpenUrl